Nearly 150 advocates from six kidney organizations around the country will converge on Capitol Hill, March 6-7 to meet with lawmakers during the 4th annual Kidney Patient Summit organized and led by the National Kidney Foundation. This event will bring together NKF’s Kidney Advocacy Committee members and advocates from Alport Syndrome Foundation, Polycystic Kidney Disease Foundation, NephCure Kidney International, Home Dialyzors United and American Association of Kidney Patients.
Among the attendees, 70 advocates selected by NKF to represent nearly all 50 states will share their stories and urge members of Congress to support a pilot program which seeks to improve early detection, care and outcomes for people with chronic kidney disease; support H.R. 1270, The Living Donor Protection Act 2017 and support funding for CKD programs run by the Centers for Disease Control and Prevention, National Institute of Diabetes and Digestive and Kidney Diseases, and Health Resources and Services Administration. https://nkf.egnyte.com/dl/1yR0r9aHz2
At the Summit, individuals who have kidney disease, dialysis patients, living donors, family members and caregivers will be united by the affirmation and hashtag “My Kidneys, My Life” (#MyKidneysMyLife) to underscore the direct relationship between having at least one healthy kidney and living at all.
“Coming together for the Kidney Patient Summit is personal for me and the many people traveling from throughout the country who seek to be heard and affect real change for those suffering from kidney disease,” said National Kidney Foundation CEO Kevin Longino, who received a kidney transplant 12 years ago. “’My Kidneys, My Life’ is not just a slogan. It’s a mantra based on facts and a plea for more public awareness.”
A press conference focused on living donation will be held the same day from 1 -2 p.m. EST. Living organ donors and kidney recipients will share their stories, demonstrate the urgent need to increase living donation.