The Kidney Health Initiative (KHI) has announced the creation and appointment of the inaugural Patient and Family Partnership Council (PFPC). A joint partnership between the American Society of Nephrology (ASN) and the U.S. Food and Drug Administration with over 70 member organizations and companies, KHI’s mission is to enhance the quality of patient care and safety and foster innovation in kidney disease. The PFPC will coordinate with the KHI Board of Directors to bring patient perspectives to, and make recommendations on, current and future KHI projects and the organization’s overall efforts.
“There are more than 20 million Americans who may have kidney disease and 450,000 receiving dialysis,” said Celeste Castillo Lee, PFPC Chair and Liaison to the KHI Board of Directors. “My hope is that the newly established KHI PFPC will make great strides in helping to understand how to better engage more patients in the crucial issues that affect those of us living with kidney diseases.”
The PFPC will identify strategic opportunities to advise KHI members on patient involvement in project proposals, outline potential patient roles on KHI projects, identify patients to contribute to project workgroups, and collaborate on developing patient centered project(s) to submit for KHI endorsement.
“Patients are at the core of all of KHI’s efforts, which is why their opinions and insights are so critical to ensuring the success of the organization’s projects and initiatives,” said Prabir Roy-Chaudhury, MD, PhD, FASN, Co-Chair of the KHI Board of Directors. “The insights from PFPC and its members will spur KHI members and projects, to focus more on issues that are important to patients, which will then help kidney health professionals to deliver the highest quality care for their patients.”